Things are going pretty well for now. He was put on Senna to help his motility issues and it's working fairly well. He still does a lot of vomiting, but it's nothing compared to what it was now that he's having fairly regular BMs. He's also tolerating 30 calorie Elecare at 34 mL/hour.... woot! His nutritionist said there wasn't anything else she could do for Caleb until he started pooping more and puking less, but I'm going to call her tomorrow and see if she at least wants to bump his speed up a little. His labs came back on Friday and showed that his CO2 levels are low, which could mean that he's dehydrated (I don't think he is) -- so we had to re-test them STAT. Hopefully it was just a glitch in the test and they don't want to bump up his TPN.
His biopsy for Hirschprungs Disease is on February 15th. We have to arrive at the hospital an hour early so that he can be given IV antibiotics prior to the test since they'll be entering his colon. I'm not sure how long it will be until we get the results back, but hopefully we won't have to wait too long. I also need to call to find out about his MRSA results. One day they randomly tested all of the kids who were in the hospital by swabbing around their g-tubes and Caleb came up positive (most of the kids in there did) -- he has to have three negative cultures before he can come off contact precautions when he's admitted. I'm being very proactive about it because when he is in the hospital, it's awful being confined to the room. So, his pediatrician is doing the swabbing for us. We did our first one a couple of weeks ago, but I haven't heard the results. Chances are I was probably supposed to call and didn't. I also need to return the call from Boston about taking Caleb up there over the summer. Oy vey, I need an entire business day to make all of these calls!
Caleb is REALLY getting brave with his mobility! He's finally starting to put himself on his tummy and stay there, push up on his arms, attempts to pull his legs up and then scoots forward. He's also starting to pull up and he's spinning around when he's sitting. I feel like things are about to get ridiculously difficult to manage! I just found a harness at Target that has a small backpack on it. There's no way he'll keep his Entralite Infinity backpack on at this age (plus, it's too big for him), but this one looks perfect and straps across his chest. We really need to start practicing now so once he's really on the move, he's already accustomed to wearing it. We'll see how this turns out!
That's really all that's going on now.... back to wild baby duty!
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